Texas Lyme Alliance's mission is to advocate, educate, and legislate for Congenital and Pediatric Lyme families the right to health through fundraising for a treatment.
Our goal is to connect resources to patients and the medical community to improve the quality of life for those we serve.
Take our Lyme survey monthly
KNOWLEDGE IS POWER
Help us learn about what treatments are working for different patients.
Texas Lyme Alliance’s goal with this survey is to help fill in research gaps for treatments for Lyme patients. We connected 3 major medical universities to collaborate on this survey to assist patients to optimize treatments.
A study approved by the University of Texas at Dallas Institutional Reviewed Board is being conducted by Dr. Sarah Maxwell of the University of Texas at Dallas in collaboration with, and under the expertise of, Dr. Jayakumar Rajadas at Stanford University. The goal of the study is to gather information regarding the effects of various evolving treatments being developed for Lyme disease. This is a patient-reported study that specifically aims to obtain information regarding the use of disulfiram and any concomitant medications being prescribed to treat Lyme disease and coinfections. Data on medication dosing, symptom resolution and adverse drug effects are being studied. The study involves questions about your health and asks about your treatment. All personal patient information will remain strictly confidential. Please note that this is a research survey, and is not being conducted for medical or diagnostic purpose and is strictly confidential.
You can participate in the study on a monthly basis by taking a quick 5-minute survey that asks questions about symptoms, treatments and results. We encourage participants to complete the survey every month so progress can be determined most accurately. A parent who is a legal guardian may complete the survey for a minor child. Those who reside outside the US are invited to take part in the survey. The researchers appreciate your willingness to complete several monthly surveys over the course of a few months.
Please click here to take this ANONYMOUS survey and SHARE it widely so we can obtain the most reliable results:
Additional follow-up surveys will be posted here. Please check back monthly for additional research requests.
Medical Gaslighting Survey
We partnered with Lamar University on this survey and it is in peer review now. It will be published as soon as possible and we appreciate all of you who participated!!
Both our studies are international and have IRB status.